Advancing Knowledge and Training
This core area of the UIC NRTC
advances knowledge and training on self-determination for people with
psychiatric disabilities. Participatory action research values and
methods guide project goals and activities. All work is accomplished by
multidisciplinary workgroups comprised of people with psychiatric
disabilities, family members of these individuals, service providers,
advocates, researchers, educators, and Center staff. The main project
goals are to:
- identify and evaluate self-determination theories, models, and activities,
as well as barriers to self-determination confronted by individuals with psychiatric
- provide ongoing training via workshops and a national conference on
self-determination and client choice to improve the understanding and support
of self-determination concepts in rehabilitation and related fields; and
- elucidate the role of technology in self-determination.
SELF-DETERMINATION TOOLS AND RESOURCES
Yourself! Assessing Self-Determination in your Life.
Yourself! is a user-friendly self-determination tool for people interested
in knowing how much choice and control they have in their lives.
Users can pinpoint life areas where they'd like to have more control
and decision-making power (such as money or relationships), and then
learn how to get started by using action-planning and web-based resources.
Areas covered in this self-assessment include finances, housing,
transportation, employment, community integration, medical treatment,
and mental health care. It is especially useful when paired with
This is Your Life! - the Center's person
centered-planning guide (see below). Download
the self-assessment [PDF
- 70K, 11 pages] or contact
the Center's resource coordinator for
is Your Life! Creating Your Self-Directed Life Plan. This
easy-to-use workbook helps people with psychiatric disabilities think
about, choose, plan for, and act on a life goal, with supports of
their own choosing. The workbook has as its foundation both person-centered
planning and the "stages of change" model. It guides people
in mental health recovery to see that life change is a process, with
natural twists and turns along the way. Download
the workbook [PDF 315K, 58 pages], or contact
the Center's resource coordinator for a copy.
Self-Determination for Individuals with Psychiatric Disabilities through
A Look at Federal, State and Public Systems as Sources of Cash-Outs and Other
Fiscal Expansion Opportunities. This paper examines
promising interconnections between the concepts of recovery, self-determination,
and self-directed care. It reviews five principles of self-determination,
noting how freedom, authority, support, responsibility, and confirmation
operate to enhance individual choice and enable people with psychiatric disabilities
to build meaningful lives. The paper then explores the major systems in the
U.S. that can serve as sources of cash-out funding, as well as those that
would be most affected by widespread adoption of self-directed care, along
with some of the barriers to change that are present in these systems. The
systems discussed include Medicaid, Community Mental Heath Block Grants,
State general revenue and legislative systems, public housing, fiscal agents
and intermediaries, federal-State vocational rehabilitation, workforce development,
public disability income support, the Ticket to Work, the banking system
and Individual Development Accounts, and the system of technology. The paper
concludes with a series of recommendations for next steps in adopting this
mental health care financing mechanism for self-determination, including
the important role of peer-to-peer services in operating these programs. Download
the document [PDF 282K].
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Raising Difficult Issues With Your Service Provider. This
booklet provides "conversation starters" for people to use when initiating an empowering dialogue with their mental health
service providers. Ways to raise issues in ten important life areas cover
education, employment, history of abuse and trauma, intimate relationships,
control over one's own money, maintaining privacy, promoting sexual freedom,
honoring choices about psychiatric medications, and showing respect for
the booklet [PDF 58K], or contact
the Center's resource coordinator for one free copy.
Seeking Supported Employment: What You Need to Know. This easy-to-read booklet guides people with psychiatric disabilities through
the process of identifying an evidence-based supported employment program.
Using a question and answer checklist format, along with an integrated
scoring system, individuals can choose the program that is right for them,
and know whether the program provides services that research has shown
lead to career success. Download
the booklet [PDF 113K], or contact the Center's resource coordinator for one free copy.
* Self-Determination for People with Psychiatric
Disabilities: An Annotated Bibliography of Resources. This annotated bibliography contains references to numerous articles,
monographs, unpublished reports, and books regarding self-determination,
self-advocacy, and self-sufficiency for people with psychiatric disabilities
and other kinds of disabilities. It also is available in manual form.
* Self-Determination Framework for People with Psychiatric
Disabilities. This Framework serves as a foundation for identifying values and approaches
that can foster self-determination for people with psychiatric disabilities.
It highlights what self-determination means, how it can be achieved, and how
it can reflect the needs of people with psychiatric disabilities from a
variety of backgrounds.
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Self-Determination among Mental Health Consumers/Survivors: Using
Lessons from the Past to Guide the Future. This publication covers
the history of self-determination for people with psychiatric disabilities,
theories and models of self-determination, and next steps for the field. Download the paper [PDF 74K], or contact the Center's resource coordinator.
National Self-Determination Workshop Series.
This Series provides ongoing training and technical assistance about
self-determination in order to raise awareness, increase knowledge, and
enhance skills of workshop participants.
and Technology Annotated Bibliography of Resources. This document summarizes numerous articles, books, and reports related to
technology and self-determination, disability, and accessibility/availability.
It also is available in manual form.
Short Technology Survey. This Survey evaluates computer and Internet
access, use, and barriers to use among individuals with psychiatric
disabilities. It can be used to assess whether access issues are
preventing use of information and communication technologies. Copies can
be obtained by contacting the Center's resource coordinator.
Webcast: Using the Internet to Promote
Self-Determination & Emotional Well-Being. This Webcast
addresses how the Internet can be used to create online communities and to
seek, find, and maintain employment. It also addresses how to determine
the validity and reliability of information provided on the Internet, and
provides personal stories about how the Internet can foster
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PROJECT ACTIVITIES AND PRODUCTS
The UIC NRTC’s National Self-Determination and Psychiatric Disability Invitational
Conference: Conference Papers. This monograph is the first-ever collection
of papers devoted exclusively to self-determination and mental health. It
is a compilation of the briefing papers presented at the UIC NRTC 2003 National
Self-Determination and Psychiatric Disability Conference. The first track
papers highlight the authors’ personal experiences on the road to self-determination.
The second track papers address the ways in which the current infrastructure
and financing of formal service systems are not conducive to self-determination
and self-direction for service participants. The third track papers focus
on societal barriers to self-determination for people with psychiatric disabilities,
as well as strategies to address these issues through political and social
action. All papers summarize current knowledge about self-determination at
specific track levels, and suggest action steps for the future. These papers
are now available for download.
Framework for People with Psychiatric Disabilities. Throughout this project year, UIC
NRTC staff and the project’s Self-Determination Knowledge Development
Workgroup (77% of whom are people with disabilities and/or personal
in social service systems) developed the conceptual framework of
self-determination for people with psychiatric disabilities. Work began
with listserv discussions about self-determination theories and current
practices, which yielded a tri-level definition of self-determination
(addressing individual, service system, and global self-determination).
This definition served as the basis for the framework, which was drafted and
discussed on a series of workgroup teleconferences. Discussion included
what self-determination means to people with and without disabilities,
cultural and gender-specific considerations, how self-determination is
fostered and impeded in the community and in service systems, and how
self-determination can be achieved by individuals and supported by families,
providers, advocates, and others. A second draft of the framework was prepared
in a Delphi survey format (allowing members a confidential way to provide
comments). Based on these results, a third version of the framework was
prepared and finalized. The Self-Determination Framework for People with
Psychiatric Disabilities is available for download.
among Mental Health Consumers/Survivors: Using Lessons from the Past to
Guide the Future. During this project
period, the UIC NRTC Director and Managing Director were invited
by the Director of the OSHU Center on Self-Determination (Portland, OR)
to prepare and submit a manuscript for publication. This paper
covers the history of self-determination for people with psychiatric
disabilities, theories and models of self-determination, and next
steps for the field. It is published in the Journal of
Disability Policy Studies in September, 2002. Copies can be
obtained by downloading the paper [PDF 74K], or contacting the Center's resource coordinator.
UIC NRTC National Self-Determination Workshop
Series. This Series provides ongoing
training and technical assistance about self-determination in order to raise
awareness, increase knowledge, and enhance skills of workshop participants.
To date, the Series has reached over 200 people in-person and several hundred
more via the Internet with segments archived for viewing.
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CURRENT WORK REGARDING SELF-DETERMINATION:
Staff, workgroup members, and consultants continue to develop the UIC NRTC Self-Determination
Workshop Series. Work also continues on the UIC NRTC Self-Determination
Product Series. This Series provides people with psychiatric disabilities
and their supporters/providers with tools and resources for increasing self-determination
at the individual, systems, and societal levels. Check out the latest tools
released as part of this Series.
NEXT STEPS IN SELF-DETERMINATION CORE AREA:
the coming year, UIC NRTC staff, the Self-Determination Knowledge Development
Workgroup, and participants in the 2003 National Self-Determination Conference
will be creating a set of management tools to help people with psychiatric
disabilities, as well as their families, providers, advocates and others,
to rate levels of self-determination found at individual, service system,
and community levels. These “Self-Determination Report Cards” will be designed
to help people with psychiatric disabilities, families, and advocates to move
themselves, their clients, and their service systems towards greater levels
of self-determination and thriving.
The UIC NRTC staff and Workgroup
members also will be working on planning and executing the 2003 National
PROJECT ACTIVITIES AND PRODUCTS
REGARDING SELF-DETERMINATION AND TECHNOLOGY:
the 2002 project year, UIC NRTC staff and the Self-Determination and
Technology Workgroup began work to develop the Self-Determination Short
Technology Survey. The Short Survey contains eleven items designed to
evaluate computer and Internet access, use, and barriers to use. This
Survey is to be included in every UIC NRTC project interview protocol to
capture information from diverse audiences about technology access, use, and
barriers. It also will be administered to audience members at the ongoing
Self-Determination Workshop Series sessions and other Center-related
conference presentations. Contact Genevieve Fitzgibbon at firstname.lastname@example.org
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CURRENT WORK REGARDING SELF-DETERMINATION AND TECHNOLOGY:
Currently, UIC NRTC staff and the
Self-Determination and Technology Workgroup are preparing to host a Webcast
entitled, “Using the Internet to Promote Self-Determination & Emotional
Well-Being,” to be broadcast on October 22, 2002, at 3pm EST. This Webcast will feature: a discussion of how
the Internet helps people with limited resources to participate in online
communities and in advocacy efforts; practical guidance and information on
using the Internet and software resources to seek, find, and secure a job; and
a panel discussion regarding how to determine the validity and reliability of
Web-based resources and how the Internet can foster self-determination.
Featured speakers will include: Ed Schwartz, Howard Dansky, Sylvia Caras,
Frances Priester, and Judith Cook.
NEXT STEPS IN SELF-DETERMATION
AND TECHNOLOGY CORE AREA:
the coming year, UIC NRTC staff and Self-Determination and Technology Workgroup
members will begin work on development of the Self-Determination Technology
Long Survey. The Long Survey is to be administered on the Web and will provide
the opportunity for a more in-depth look at information and communication
technology (ICT) utilization and barriers, and how ICT can foster and impede
self-determination among people with psychiatric disabilities.
Jessica A. Jonikas, MA and Judith A. Cook, Ph.D.
Fitzgibbon, BA and Drew Batteiger, BA
SELF-DETERMINATION KNOWLEDGE DEVELOPMENT WORKGROUP MEMBERS:
Belcher, Judi Chamberlin, Kathy Furlong-Norman, Barbara Granger, Ramiro Guevara,
Tamar Heller, Chris Hendrickson, Leah Holmes-Bonilla, David Oaks, Laurie Powers,
Joseph Rogers, Andrea Schmook, and Suzanne Vogel-Scibilia
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SELF-DETERMINATION AND TECHNOLOGY WORKGROUP MEMBERS:
Caras, Howard Dansky, Dan Phillips, Frances Preister
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