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This monograph is a compilation of the briefing papers presented at The National Self-Determination and Psychiatric Disability Invitational Conference: We Make the Road by Traveling on It. The papers, written by people with psychiatric disabilities and other experts, were designed to summarize current knowledge about self-determination, and to suggest action steps for the future.

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Introduction and Table of Contents

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Conference Agenda

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Track #1 Papers: Individual Self-Determination & Recovery

“Self-Determination for People with Psychiatric Disabilities: Personal Obstacles and Facilitators,” Joseph A. Rogers & Susan Rogers

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“Run for the Stronghold: The Story of One Survivor’s Source of Self-Determination – Self-Acceptance and Love,” Sarah Triano

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“The Role of Information & Communication Technology in Promoting Self-Determination for Mental Health Consumer/Survivors,” Howard Dansky

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“Self-Determination in Mental Health Recovery:
Taking Back Our Lives,” Mary Ellen Copeland

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“Early Findings of the University of Illinois at Chicago, National Research and Training Center’s Web-Based Survey on Consumer Self-Determination and Technology,” Judith A. Cook, Ph.D., Genevieve Fitzgibbon, & Drew Batteiger

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Track #2: Self-Determination in Mental Health and Other Systems

“Contextualizing Self-Determination within a Mental Health Recovery Oriented Service and Support System,” Steven J. Onken, Ph.D., with Jeanne M. Dumont, Ph.D., Priscilla Ridgway, A.B.D., Douglas Dornan, M.S. & Ruth O. Ralph, Ph.D.

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“The Promise of Self-Determination for Persons with Psychiatric Disabilities,” Thomas Nerney

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“Getting to Systems that Promote Self-Determination through Research and Evaluation,” H. Stephen Leff, Ph.D., Jeremy Conley, Theodora Campbell-Orde, MPA, & Valerie Bradley, MA

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“Self-Determination and Person-Directed Support,” Laurie E. Powers, Ph.D

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Track #3: Societal/Collective Self-Determination

“Barriers to Self-Determination for People who have been Identified as Having Mental Illness in Western Society,” Pat Risser

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“The Contract with Women of the USA: A Model of Policy Advocacy to Promote Self-Determination,” Leslie R. Wolfe, Ph.D.

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“Mad Movements: Chaordic Paths in Mental Health Activism toward a Revolution of Empowerment,” David W. Oaks

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“Fostering Leadership: Collective Self-Determination among People with Psychiatric Disabilities,” Larry D. Belcher & Kathy Muscari

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Description of Lead Authors

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UIC NRTC Mental Health Self-Determination Background Materials

“Self-Determination among Mental Health Consumers/ Survivors: Using Lessons from the Past to Guide the Future,” Judith A. Cook, Ph.D. & Jessica A. Jonikas, M.A.

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“Self-Determination Framework for People with Psychiatric Disabilities,” UIC NRTC on Psychiatric Disability and the UIC NRTC Self-Determination Knowledge Development Workgroup

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These documents require Adobe Acrobat version 5 or later to view and print. To download and install this software, please visit the Adobe web site.

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