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2003 National Conference on Self-Determination for Mental Health Consumers/Survivors

PROJECT PURPOSES:

On October 2-3, 2003, the University of Illinois at Chicago, National Research and Training Center on Psychiatric Disability sponsored, “The National Self-Determination and Psychiatric Disability Invitational Conference: We Make the Road by Traveling on It.” This conference was co-planned with a workgroup comprised primarily of individuals with personal experience in the mental health system. It brought together 50 national experts in a variety of areas related to self-determination, recovery, mental health services, peer support, social change, and political action. The working agenda addressed helping individuals with psychiatric disabilities take charge of their own lives; helping systems change to support this approach to services and policies; and helping communities accept the importance of self-determination for people with mental health and emotional difficulties.

The conference was divided into three tracks: 1) Individual Self-Determination and Recovery; 2) Self-Determination in Mental Health and Other Service Systems; and 3) Societal/Collective Self-Determination. Working sessions were held within each track. During these sessions, conference participants discussed issues relevant to what helps and what hinders self-determination for people with psychiatric disabilities. Issues of diversity, gender, age, cross-disability needs/strengths, and the importance of technology were emphasized in each working session.

To initiate discussion, a series of briefing papers was presented in each of the conference tracks. The first track papers highlight the authors’ personal experiences on the road to self-determination. The second track papers address the ways in which the current infrastructure and financing of formal service systems largely are not conducive to self-determination and self-direction for service participants. The third track papers focus on societal barriers to self-determination for people with psychiatric disabilities, as well as strategies to address these issues through political and social action. All papers summarize current knowledge about self-determination at specific track levels, and suggest action steps for the future. These papers are now available for download.

2003 NATIONAL SELF-DETERMINATION CONFERENCE LEAD PROJECT STAFF:

Jessica A. Jonikas, MA and Judith A. Cook, Ph.D.

2003 NATIONAL SELF-DETERMINATION CONFERENCE WORKGROUP MEMBERS:

Larry Belcher, Judi Chamberlin, Kathy Furlong-Norman, Ramiro Guevara, Tamar Heller, Chris Hendrickson, David Oaks, Laurie Powers, Joseph Rogers, Andrea Schmook, and Suzanne Vogel-Scibilia.

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